2019 Sara Wilde 2019 Sara Wilde

Arguments in autism debate

Arguments in autism debate in Ontario have missed the mark

Margaret F. Gibson
University of Waterloo

Julia Gruson-Wood
University of Guelph

Wendy McGuire
Neurodiversity Network

Patty Douglas
Brandon University

Estée Klar
York University

This is an Op-Ed about the autism debates in Ontario published by the Waterloo Region Record.

Recommended Citation:

Gibson, Margaret F., Patty Douglas, Julia Gruson-Wood, Estee Klar & Wendy McGuire. (2019). Arguments in autism debate in Ontario have missed the mark, Waterloo Region Record, 15th May. https://www.therecord.com/opinion-story/9222539-arguments-in-autism-debate-in-ontario-have-missed-the-mark/   

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2019 Sara Wilde 2019 Sara Wilde

Beyond disordered brains

Beyond Disordered Brains and Mother Blame

Patty DouglasB
randon University

Estee Klar
York University

Abstract

This chapter provides an overview of critical issues in autism and mothering in order to open up a complicated terrain of mother blame, deficit understandings of autism and biomedical regulation of mothers. We first briefly introduce the reader to historical currents in autism and mothering, tracing the emergence of autism as a brain-based difference and mothers’ labour as the presumed “fix” for the disorder. Along the way, we meet the “refrigerator mother” – that “cold” mother of the 1950s whose destructive love was thought to cause autism – as well as the “mother therapist” and “mother warrior” of today who must shore up all her resources to wage war against autism in her child. Next, the chapter introduces neurodiversity, feminist disability studies and critical autism studies as academic and activist movements that challenge this fraught terrain and offer new possibilities to understand “autism” more positively and to be in relation with those who have attracted the label of autism. Finally, we recommend future research directions that centre lived experience, embrace difference as fundamental to life, and value interdependence as both an ethics and a politics. The chapter also provides recommendations for further reading.

This is the final author copy of a chapter that was published in the Routledge Motherhood Companion.

Recommended Citation:

Douglas, Patty & Estee Klar. (2019). Beyond disordered brains and mother blame: Critical issues in autism and mothering. In Lynn O. Hallstein, Andrea O’Reilly, and Melinda Vandenbeld Giles (Eds.). Routledge Motherhood Companion. Routledge.

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2019 Patty Douglas 2019 Patty Douglas

Re-storying autism

Re-storying autism: A body becoming DSE approach

Patty Douglas
Brandon University

Carla Rice
University of Guelph

Katherine Runswick-Cole
University of Sheffield

Steacy (Anthony) Easton
Independent Artist and Writer

Margaret F. Gibson
York University

Julia Gruson-Wood
York University

Estee Klar
York University

Raya Shields
York University

Abstract

This paper presents and analyzes six short first-person films produced through a collaborative multimedia storytelling workshop series focused on experiences of autism, education and inclusion. The aim of the project is to co-create new understandings of autism beyond functionalist and biomedical ones that reify autism as a problem of disordered brains and underpin special education. We fashion a body becoming disability studies in education approach to proliferate stories of autism outside received cultural scripts – autism as biomedical disorder, brain-based difference, otherworldliness, lost or stolen child and more. Our approach keeps the meaning of autism moving, always emerging, resisting, fading away and becoming again in relation to context, time, space, material oppressions, cultural scripts, intersecting differences, surprising bodies and interpretative engagement. We argue that the films we present and analyse not only significantly change and critique traditional special education approaches based on assumptions of the normative human as non-autistic, they also enact ‘autism’ as a becoming process and relation with implications for inclusive educators. By this we mean that the stories shift what autism might be and become, and open space for a proliferation of representations and practices of difference in and beyond educational contexts that support flourishing for all.

This is an accepted manuscript of an article published by the International Journal of Inclusive Education available online at: https://doi.org/10.1080/13603116.2018.1563835.

Recommended Citation:

Douglas, P., C. Rice, K. Runswick-Cole, A. Easton, M. F. Gibson, J. Gruson-Wood, E. Klar & R. Shields. (2019). Re-storying autism: A body becoming disability studies in education approach. International Journal of Inclusive Education. https://doi.org/10.1080/13603116.2018.1563835

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