Moving off script: A/synchronous storytelling with family carers and people with learning disabilities

Abstract

This paper is about digital storytelling in the context of health and social care research with people with learning disabilities and family carers in the United Kingdom. We explain how we were drawn to decolonial thinking in the formulation of ‘metodologia otra’ to think again about the processes and practices of (digital) storytelling in health and social care research. We conclude by reflecting on what we learned about digital storytelling methods and the need to ‘move off script’ as an ethical response to storytellers who want to tell the stories that matter to them in ways that matter to them.

Runswick-Cole, K., Douglas, P., Ryan, S., & Smith, M. (Accepted: 2025). Moving off script: A/synchronous storytelling with family carers and people with learning disabilities. Journal of Literary and Cultural Disability Studies. ISSN: 1757-6458 (In Press).

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Beyond disordered brains and mother blame

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A Rapid Scoping Review of the Mental Health Needs and Mental Health Support of Carers of Adults with Learning Disabilities in the United Kingdom